MULTIPLE MYELOMA AWARENESS CAMPAIGN

Objective

To raise awareness for a rare cancer—multiple myeloma.

 

IPR in Action

We created a campaign, “eRace Cancer”, to raise awareness of Multiple Myeloma and innovative new therapeutics through the story of a marathon runner who is now 75 years old with 100 marathons to his name! IPR utilized social media, mainstream media, strategic messaging, and video production.

The Results

Facebook and Twitter campaigns have had great reach and have also resulted in mainstream media placements—including radio, TV and print. The campaign is 6 years and running strong!

Social Media Coverage

Facebook & Twitter Influencer Followers

Runner’s World | Scientific American | AARP | ASH | MD Anderson Cancer Center | MMRF | Leukemia-Lymphoma Society

Social Media Statistics

 

  • 344,000 views on TODAY Show Facebook Page 
  • 3 million retweets from Vancouver Sun article
  • 3,100 Facebook followers
  • 4,357 viewers of video of 100th marathon

TV Coverage

 

Social Media Leads to Mainstream Media

 

SUPPORT FOR PATIENT ADVOCACY ORGANIZATIONS Sub Heading

Patient Advocacy Organization - Case 1 Sub Heading

Objective

To raise the public profile of a small organization representing a rare disease.

 

IPR in Action

We involved the patient advocacy organization in national political discussions about insurance issues impacting patients, and made them the go-to organization for comment.

The Results

We achieved national media placements and even caught the attention of a Congressman fighting for this issue.

 

washington post
nbc logo
npr logo

Patient Advocacy Organization - Case 2 Sub Heading

Objective

To give direction and purpose to a languishing organization.

 

IPR in Action

We worked with the leadership to give them a new mission, strong messages and a call to action.

The Results

We helped launch a new organization with a new identity to match the mission.

 

SUPPORT FOR CLINICAL TRIALS & REGULATORY APPROVALS

Clinical Trials & Regulatory Approvals - Case 1 Sub Heading

Objective

To support regulatory review of a medication essential for a rare cancer, but that carried the risk of possible future side effects.

 

IPR in Action

We drafted patient and advocacy testimony saying with the medication there was a possible future RISK of death, but without the medication there was a 100% certainty of dying.

 

The Results

The Results: The testimony was delivered before the appropriate regulatory committee and the medication went on to be approved.

NOTE: the patient group was our client here. The pharmaceutical manufacturer was not involved.

Clinical Trials & Regulatory Approvals - Case 2 Sub Heading

Objective

To speed up patient enrollment in a clinical trial that had fallen behind schedule.

 

IPR in Action

We built local media campaigns for each of the principle investigators in their home communities, inviting patients to enroll. We concentrated on television and identified live interview opportunities for segments that would be longer than a typical news report. We developed messages to make each interview seem timely and newsworthy beyond the clinical trial itself.

The Results

We achieved several media placements that supported patient accrual and helped the trial to conclude in a timely manner. This also laid the groundwork for media contacts and awareness when the product does eventually get to market.

SUPPORT FOR A RARE CANCER

Objective

To raise awareness of a rare cancer with a funny name – multiple myeloma – and let patients know there are exciting new treatments available.

 

IPR in Action

We created a media and social media campaign called Cancer Patient Statement of Principals.

 

The Results

We created a campaign aimed at patients and media that we could showcase at various medical meetings and advocacy events. We augmented interest in the campaign with celebrity participation.

SUPPORT FOR ACCESS TO MEDICATIONS Sub Heading

Objective

To counter a group called ICER threatening access to medications for serious diseases.

 

IPR in Action

We went into action on behalf of a coalition of clients creating and supporting multiple tactics: organized a news briefing and a webcast, drafted commentaries and testimony, issued several press releases.

The Results

We placed multiple Op-Eds in mainstream newspapers, achieved several mainstream news articles, and a twitter reach exceeding 80,000 tweets and retweets.

 

News Coverage

“one of the more noteworthy sessions will be held serval blocks away, where patient advocates will be speaking out against barriers to care”

Op-Eds & Commentaries

“Treatment costs: Don’t jeopardize my health to fix health care”